As shared by mom:
"Anthony was a sickly child, visiting the pediatrician's office over 34 times in his first year of life. He broke his arm at 8 months, was hospitalized with pneumonia at 6 months and then again at 3 1/2. When he was 6 months he weighed a whopping 21 pounds, then his growth was stunted. At 3 1/2 he only weighed 24 pounds. Every time he got sick with an upper respiratory infection he would vomit about once a day. He had the blood work for Celiac done at age 2 1/2 and it came back negative. The doctor treated him for cyclic vomiting and GERD. He actually went a stretch of 60 days one time vomiting once a day. He was life-flighted to Children's Hospital in Pittsburgh at 2 1/2 for pneumonia and a plural effusion. Sick, sick sick! He was always sick. Having Celiac myself my mother's instinct kicked in.
So we then got our referral to a GI doctor.
Diagnosis still was not easy even though these doctors knew exactly what they were dealing with. The reason his blood work came back negative was because he has a rare IgA absence. A complete absence of the component of his blood that could tell us if he had celiac and the reason he was always sick! He was scheduled for the biopsy 3 times. The first two times he was too sick to go under anesthesia so the procedure was canceled. The second time we still drove the 2 hours knowing he was still probably too sick. My husband and I lost it. My husband is a mild mannered person but he started screaming at the nurses and doctors, "My son is going to die and no one is doing anything about it!" I was crying hysterically. The doctor sat us down and calmed us down and talked to us. He put him on some supplements and got us scheduled again pretty quickly. Before the procedure the doctor talked to us saying that we won't have any answers today because the biopsy had to go to a pathologist...yadda yadda yadda.
When he came out from the procedure he said that "I am 100% sure you son has Celiac disease" and he was the worst case he has ever seen!!! and he's seen thousands. Finally! We got the answers we so desperately needed. I saw the worry in his face. So he got us some vitamins and supplements to get him feeling better and put some weight on my poor baby's body! I didn't sleep for 3 1/2 years! No lie. Every little cough we were at his side because we knew vomiting was a split second after. It was horrible. I am making it my life's mission to spread the word so that NO family has to go through what we went through. I am hoping to start my non-profit within the year."
Anthony's Gluten Free Surprise is also available on Amazon :)
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