(After my breakdown the night before, I went home for the first time in days. The post below was a much needed reminder that there were positive focal points.)
from chapter 4 Out of ICU
Caringbridge Post: Sunday, February 26, 3:00 am
Exhaustion is setting in on Team Michael. It has been quite a roller coaster for all of us. But they all should be very proud – Michael has quite a posse supporting him.
Today was great in many ways. Mike was more active and more alert than he has been since the accident. But it was a very nerve racking day for us. With more activity came more fear, confusion and frustration for Michael. There were difficult times.
We were all disappointed that surgery was moved back. The delay is due to scheduling the surgery room. If an opening becomes available it could be sooner.
We are all very appreciative of your thoughts and prayers. Keep them coming.
When I texted Kayla and Walt Sunday morning to see how Michael’s night was, I was reminded to stay home. While neither said he had a bad night, they didn’t give me anything good to hear either. And when I got to the hospital, it was obvious that the past several hours were very rough. Kayla headed home for a shower and some much needed sleep. If either of them got any rest the night before, it was very little. Nights were getting worse. Days were one thing, but Michael’s agitation, fear, demands, and heart rate all increased as the sun started to set and always worsened as the night progressed. He needed the touch of a hand on him at all times, with someone ready to talk him down when his heart rate started to accelerate, setting off the alarms. And I quickly realized that I needed to stop saying I could spend that night with Michael alone. We needed to work in pairs. I needed to accept Steve’s offers to stay with me and Michael.
The positive and more upbeat side I originally tried to portray in my Caringbridge posts was gradually starting to reflect the reality of my pain and frustration.
Caringbridge Post: Sunday, February 26, 4:19 pm
From sitting (with PT assist) on edge of bed and standing at walker on Friday - to having to be lifted to chair because PT isn't here on weekend. SO GLAD the weekend is almost over! Surgery on wound on his backside tomorrow - also a very good thing! Steve and I will be spending the night tonight. I went home last night - reluctantly - But Walt and Kay spent last night and need some sleep! - and I needed some rest for today.
Wish that damn feeding tube didn't come out yesterday! His pain meds (and whatever else they were giving him were a nice steady flow through that! But it should go back in while in surgery tomorrow and hopefully all a bit smoother after that. Of course he is still getting pain meds - its just through his IV.
The nice thing about scientists (doctors and medical professionals) - is that they are honest! They don't sugar coat - but they don't lye (or is it lie - I always get that confused). While it will be a road - with pain - he is young and strong and will recover.
Thank you for continued prayers.
Debbie and Steve