And today, I received an email from one of those nurse that made me cry---literally.
With her permission, I am sharing Connie's email, and a picture of her son. I remember her coming up to talk to me after my presentation. It was great to hear back from her with an update about her handsome, active, nearly sixteen year old son.
Celiac is the most common genetic autoimmune disorder, yet the most under and mis-diagnosed. And to make it even more complicated, there are over 300 symptoms. And, as you can see in Aaron's case (and my own son's case) results on a gluten free diet are often just as powerful even when tests are negative. I worry that many who test negative don't follow through and understand that they could possibly be one of the many, many with non-celiac gluten sensitivity.
Materials are available through the website (and heck, if you are within an hour or so of the St. Louis area, I'd love to come talk to your school nurses.)
TOO MANY are sick when a "simple" diet change can change (and save) their life.