Once my son was home and I was finally able to rejoice in what was the only thing that had been important – his recovery – I was 'free' to exert some emotion in another direction. I sent a letter to the rehab facility, sharing my extreme dissatisfaction with the way they handled his diet. I included a copy of Adam’s Gluten Free Surprise as a way to communicate the strict requirements of this diet. It was originally written as a means to reach family and teachers and offer a view through the eyes of a child as to the meaning of a gluten free diet and the extent of care required; label reading and cross contamination.
It was awesome a couple weeks later to receive a letter stating that my letter prompted a reevaluation of their menu system and software; to properly flag food that is or isn’t gluten free. They revised menu options to ensure gluten free entrée options are always offered.
My letter to the facility included names and contact information for local gluten free bakeries after stating, “I challenge anyone responsible for the way patients are fed to eat their three daily meals using the options my son was given.” They stated that they passed this info on to their dietitians. I sure hope this means that they use these wonderful local resources.
Just trying to make a difference. Through the time it took to write one letter, maybe others will now be fed appropriately. If each of you who reads this would also send just one letter (including some sort of resource, be it 'Adam' or another book, or pamphlet or whatever your local support group provides - how many others will benefit?) Step out and make a difference :)
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