Both books are getting a new look.
Waiting for digital proofs and then physical proofs.
New editions will include a resource page from Beyond Celiac
for kids, parents, and schools.
Because every child deserves teachers, babysitters, grandparents, family,
and others, understand their special diet.
I originally wrote the post below nearly two years ago; March 2015. Today is the fifth anniversary of that worst day of my life. As you can see from the timeline, he recovered----we were blessed with a miracle.
So what is he doing on this fifth year, after those days when we had no idea what his future would look like?---exploring Antarctica. He is experiencing yet another trip of a lifetime, on his quest to step foot on every continent.
Life's roller coaster. Even at its very lowest point, we must keep in mind----it goes back up.
My Son - My Hero
From severe traumatic brain injury to complete recovery.
Was he changed? Of course he was. Who wouldn't be. (We all were.)
We were blessed with such an amazing recovery
and inspired by his direction forward.
Extensive testing 5 months after "that day" had the evaluator asking, "Are you sure he had a brain injury?" No cognitive, speech, or motor deficits. No memory loss (other than the accident and most of the two weeks in the hospital) and no pain.
I always believed Michael would recover. My faith may have dimmed at times, but I just knew.
I thank God every day. And I thank Him for my amazing family.
My son may be the hero in these photos, but I also discovered what true heroes his sisters are; such amazing strength and support every step of the way.
And my husband - by my side and my son's throughout. We were all so supportive of each other, including Michael's dad and his step-mom. We truly were all "Team Michael." And, of course, I learned so much about myself--my own strength and my faith.
Writing was my therapy. Putting it all on paper was my way of relieving those memories rather than reliving them. This is the result:
The Syrup Maze: An Inspirational Journey Through Recovery from a Traumatic Brain Injury
Yesterday I shared a post about my son and something he was born with, leaving me to wonder if it was due to my nutritional deficiencies. He was born when I was 29 and most likely living with undiagnosed celiac most of those years. (and I still had eleven years to go before being tested and diagnosed!)
All the unnecessary health issues I faced, all the unnecessary health issues that could, and most likely do, occur to babies born to nutritionally deficient moms of undiagnosed celiac (I'm assuming and would guess. Remember, I'm not a doctor, nor do I play one on TV.) that could be prevented with proper testing and diagnosis and diet.
WHY is testing not done routinely?! I ask this all-the-time.
Of course, I hear things like: cost, insurance, cost, insurance.
Silly me, I see the cost of being sick (for YEARS) much higher than that of the testing, but that's just me.
So now let's fast forward to 26 years after my last child was born to the birth of my most recent grandchild (two years ago). We were 'privileged' to discover the number of newborn screenings that are conducted!
*Special Note: I'm not saying----nor do I believe---that screening for celiac is appropriate for newborns (unless its genetic testing) since they wouldn't yet be consuming gluten.
But we have kids with obvious symptoms not getting tested---its a big thorn in my side!
So now let me share the article I wrote several months after my grandson was born:
Newborn screenings--there's a LOT--And for good reason. Screenings lead to tests that save and improve lives. Until recently, I had no idea just how many screenings were conducted on our newborns.
Since being diagnosed with celiac disease almost fifteen years ago, and since discovering that celiac actually affects nearly 1% of us--I've been an advocate for routine testing. Of course, when I pose this question, "why aren't we testing everyone?" the answer is always "money." hmmmm Of course, if we compare the cost of a lifetime of illness to the cost of the test and then a lifetime of health, I'm thinking the cost weighs heavier on the forty years of illness, but I'm not an "expert."
I'm even more upset with the lack of routine testing than I was before. Cost? Is that really the reason? C'mon..... Here's why I ask:
My grandson was born in March. LOVE-this-boy! The love we feel for our children and our grandchildren is so much it hurts--and when there's a problem (or potential problem) we can lose focus of anything else going on in the world at the moment. During a follow up visit to the pediatrician that first week after he was born, my daughter was told my grandson's newborn screenings suggested that he could have a fatty acid oxidation disorder. She was told NOT to let him go more than four hours without a feeding--preferably no longer than three hours. And almost in the same breath as "DON'T let him go more than four hours without a feeding" she was told, "But don't worry about it, he probably doesn't have it." What? NOT worry? She was then sent to a children's hospital for genetic testing.
And then, there at the hospital, the doctor conducting the testing emphasized, "Actually, don't let him go more than two or three hours without a feeding." And again, "But don't let it stress you out as he probably doesn't have it." What?! "Oh, and by the way, the results won't be in for two to three weeks." What?! Apparently IF he had this disorder, it could cause his blood sugar to plummet (resulting in him not waking up)--and many other major health concerns. For those who DO have this, knowing it is life saving. So yes, this screening is important.
This poor new mom (my daughter) had to set her alarm every two hours. She was doing a pretty good job at not letting herself get too stressed out about it, (outwardly, anyway) as this is a rare disorder, with most positive screenings being false positive. But how does a person not think about it? It was a sliver under the nail--and she was getting even worse sleep than many new mommies. As soon as the baby was done nursing, she'd set her alarm for two hours. And when it went off, she first had to struggle to wake herself up, then him, and then encourage him to eat even if he wasn't ready, hoping he would go right back to sleep and hoping she could go right back to sleep since her alarm would be waking her in another two hours. Thankfully, the results didn't take three weeks--or even two weeks. My daughter got the call one week after the blood sample was taken for the genetic testing. Negative. "Let him sleep," she was told. Heavy sigh of relief all around.
So, through this, I discovered that newborns (in Illinois) are screened for over 58 conditions. 58!! According to the Illinois Department of Public Health: "Early detection, diagnosis and treatment of these conditions can prevent death or disability and enable children to reach their full potential."
Many of these conditions are rare, but vital for those detected:
Fatty Acid Oxidation Disorder--1:40,000
So, if we are screening to save and improve lives, how about adding the most common genetic autoimmune disorder? Look at this study released by the NIH in 2003, where we got the 1:133 stats for celiac disease. If you read this study, however, you will see that celiac affects way more than 1:133. One out of every 133 "not at risk" have celiac. The numbers go WAY up for anyone in an "at risk" category. (and there are many "at risk" factors.)
Of course, we know that we can have the gene for celiac but not develop it--or we may develop it at any age: 2, 12, 40 or 72. But wouldn't it be good to know when we have the potential in order to be able to be aware of the signs and symptoms? It could prevent those of us who suffered a lifetime, and the many who continue to suffer symptoms without answers. Over 80% with celiac remain undiagnosed! And with this lack of diagnosis comes lack of treatment (a gluten free diet) and lack of health. Here's just a sample of what families continue to endure because of lack of testing. SO avoidable!
Of course, naturally, sometimes these tests and screenings add undue stress and anxiety, as my family discovered during those first weeks after my grandson was born. It is one thing when you understand something, and something completely different when you don't. For a new mom who has never heard of celiac to be told, "Your child has the gene for celiac disease; you will need to watch for him to possibly develop: weight loss, an inability to grow or gain weight, severe stomachaches, diarrhea, constipation, tooth problems," and on and on, (with a list of hundreds of possible symptoms)--yes, this can be frightening. Add, "He might need a very strict gluten free diet for life." For anyone who has never heard of this disease and who googles it as I did with fatty acid oxidation disorder, this would be just as frightening as it was for us with my grandson.
Of course, I understand celiac, and I have seen and heard over and over and over, stories of children who have gotten so extremely ill due to lack of testing and a proper gluten free diet. I know the impact of gluten on someone with celiac. I know how relatively 'simple' it is to eat gluten free. And I know the huge increase in health and quality of life. This testing NEEDS TO BE ROUTINE!! This is a disease that affects close to 1% of the population! Not 1:40,000. Not 1:10,000. Not 1:1,000. 1:100! This is HUGE! (and even more have NCGS--NonCeliac Gluten Sensitivity)
Learn more about Newborn Screenings (from the CDC)
Blood tests vary state-to-state
Find out what your state screens for HERE.
Screening and testing for celiac disease is NOT routine--yet (at least not yet in the US). When (not if, but when) it is routine, I don't know what the appropriate age is?--genetic newborn testing? celiac testing once gluten is introduced? Age 2? Age 5? But it needs to happen (or at least recognized and tested for when symptoms begin or when a family members tests positive). And until it does, we work on education. For family members of those of us diagnosed, we encourage periodic testing. For those with symptoms, we encourage (and sometimes have to push for) testing. But------
Signs and Symptoms?--What are those? Testing won't happen unless doctors understand celiac signs and symptoms and recognize it as a possible reason for the symptoms being seen.
Another way to increase awareness that could potentially lead to testing, is by educating those who routinely see our kids that are experiencing signs and symptoms-----School Nurses.
Please check out Gabriel's Journey at www.gabrielsjourney.org, a School Nurse Celiac Education program.
I had my third (and last) child in 1989, a boy after 2 girls. As I mentioned in a previous post, I felt my healthiest during my late teens and my first two pregnancies, making me wonder if there is some sort of hormonal something-er-other that interferes with celiac (temporarily, at times, when our bodies need nutrition the most; a hormonal remission of sorts? I'm not a doctor, nor do I play one on TV. I don't have an answer to this question.)
Looking back, and knowing what I now know, by the time I got pregnant with my son, my body was pretty nutritionally deprived. I didn't look as healthy as I did with the first two. Actually, according to pictures, I didn't look healthy at all.
I had a feeling (before Michael was born) that something was wrong with him. It wasn’t a feeling that kept me up all night or made me extremely fearful. It was just a feeling, a little voice. I didn't say anything out loud (other than sharing with my mom), afraid of making something bad come true.
I remember noticing a flash of something different about his left eye the day before his first doctor’s appointment, three days after he was born. The thought entered my brain, then seemed to evaporate. I realized later that I knew there was a problem before I was even told. The doctor seemed to be examining his eyes for a long period of time before she said she couldn’t detect a red reflex in his left eye.
I asked her what this meant, as I couldn’t help but to notice the look of concern on her face. She made it clear that she was not an eye doctor and that it was important for him to be seen by a pediatric opthamologist. The fact that she made the appointment with the specialist immediately, herself, frightened me. There was a definite sense of urgency.
I found out later how fortunate I was that she didn’t tell me what she suspected: retnoblastoma.
Once at the pediatric opthamologist, with eyes dialated, it was obvious there was a problem. The iris was a thick milky color. Basically, he had a cataract, (actually, a bit more involved than just "cataract." It was called PHPV (Persistant Hyperplastic Primary Vitreous) and involved scarring of the blood vessels.)
He needed surgery and would then be fitted with a contact lens. Of course, the sooner the better. The earlier he could see out of that eye and the sooner he made those connections to the brain, the better chance he had. I was scared, naturally. I was depressed. And oh was I tired. Its true, sleep is an escape, and that’s all I wanted to do. Of course, I was also suffering from undiagnosed celiac at that time (and would be for the next 10plus years!). Oh how much more energy I'd have had had I been gluten free. Clearly, undiagnosed celiac doesn't just affect the person with it; it affected my kids, my marriage, my family. Oh how much better my emotions would have been had I been gluten free. But----that was the "when." We can only make good with the "now."
Michael's first surgery was at just one month - and it lasted three very long hours. Oh how tiny he looked in that great big metal crib with the I.V. boarded to his little arm and the heart and breathing monitor pads on his chest. Half his face seemed to be covered with thick gauze and tape. I wasn’t prepared to see him look this way. Now I know there are, and always will be, far worse things for parents to have to face. But until this time in my life, this was definitely the hardest for me.
One month later, he was fitted with his contact lens. That afternoon we brought home a two month old baby who needed to have this contact lens removed for cleaning on a weekly basis. So I just became the Little Engine that Could: “I know I can. I know I can. I know I can.”
If something is worth having than it’s certainly worth fighting for. I made a promise to him that I would make it as easy as a diaper change, and I must admit, I got pretty darn good at changing his contact lens.
The contact lens changes were one thing, patching was another. In order to get his left eye to work, we had to put a patch on his good eye. To start with, we were told to do this for an hour each day. Of course, it only counted if he was awake and looking around; he needed those brain connections and to develop that eye. But he’d fall asleep, or sometimes just cry. He wasn’t seeing anything, and we knew it deep down.
Two months later, we were told that a membrane had grown back in his eye, explaining just why he wasn’t seeing. Back to surgery. This time a portion of his iris, the colored part, was also removed in order to remove the entire attached damaged lens. This left him with what looks like a very large pupil. It never closes in bright light, so he was, and always will be, quite sensitive to sunlight. Sunglasses became a part of his life at a very early age.
His vision improved - yay - but I came home with instructions for increased patching time after each and every visit with the opthamologist - ugh!
By the time Michael was crawling, patching was hell. He would constantly pull it off if he wasn’t kept busy. I couldn’t just put him on the floor with some toys to play with. He needed to be entertained constantly. Since we were up to two to three hours of patching a day, this became very tedious. I’m sure it was hot. I’m sure it got itchy. And he wanted to see as well as he knew he could see out of that right eye.
But I had to be stern. If I would soften up about it one day, the next would be even harder. I had to do this. I felt responsible for his vision. I’d sternly tell him “no” every time he’d rip that patch off, then, when the dam couldn’t hold it any more, I’d go into the bathroom and cry.
Of course patching wasn’t the only problem. Babies tend to rub their eyes at times. Plus, they never seem to stay in one place. It didn’t take me long to be able to detect whether or not the lens was in, just by looking at him. I had to be aware always. If I couldn’t see it, I’d first search his eye, hoping it was just stuck up on top. If not, well.........the alarm went off and the search was on. (Those lenses weren't cheap!)
Here’s where that little voice came to our rescue again and again. If you’ve ever lost a contact lens, you know just how difficult it can be to find. And most times, by the time we discovered it missing, we didn’t even know what room it was in. But his angels (my angels) came to our rescue over and over again! We never completely lost a lens (well, maybe one) that we couldn't eventually find---even two days after one lost lens when it seemed to just fall from the top of his head when he looked down (TWO DAYS after losing it and the day after a bath!--and when I just happened to be right there, watching.) Angels?---(well, they made themselves known again, nearly twenty years later with him.)
A couple more surgeries - including strabismus (muscle) along the way.
One day (when he was about four) he was riding his big wheel bike (with the patch on) and ran into a smaller child. A relative of that child yelled at my son asking “why did you do that!” I just wanted to scream “because he can’t see, damn it!” Michael would beg for me not to put that patch on. It became so emotionally difficult that I started to let days go by without using that awful phrase, "patch time." Of course, when my strength fell short, and the patch was left on the shelf, the guilt set in. It was a no win situation for my emotional health (which was already reduced because I was still eating gluten.)
At five years of age, back to surgery where we were then told to stop patching and to stop using the contact lens; it was no longer helping. The retina in that eye had started to fold and all our efforts were over. So this was it. All those hours of patching, all those tears, all that hope. And this was it. I mourned almost as if there was a death.
But could I change things? No. Unfortunately it was no longer something I could even fight for. He was now happy; no more patch. I have to believe there was some reason for all this. Who knows what research will bring. He’s had vision in that eye. The connection was made. Maybe this will prove important to some future surgery. But since he turned five, he's had very minimal vision out of that eye. Very minimal.
And I can't help to wonder sometimes if this was all due to the fact that I was undernourished while I was pregnant with him. I wonder, but I will never know. Maybe it had nothing to do with it.... But if it did - so avoidable. And it makes me wonder how many unborn babies are affected by needlessly undernourished moms due to undiagnosed celiac.
* Special Note *
I originally wrote the above post on February 16, 2012. (With my blog's fifth anniversary, which started January 31st 2012 / 2017, I've been revising and resharing each article.) Three days, after the original post about my son, (Feb. 19, 2012) Michael was involved in a horrible car accident. (He is FINE now! absolutely fine! Actually, he is on an amazing journey to Antarctica as I write this.)
But now, as I read that post above (and cry with some things I connect to what we went through five years ago) I wonder how all we went through with his eye (and brain connections) back then, may have impacted his recovery. You see, he suffered a traumatic brain injury in that accident (a severe TBI). Our brains are amazing and so extremely complex. Who knows, maybe parts that were strengthened due to monocular vision aided in his amazing recovery. Another something-something we will never know. But that's not necessary. We are blessed with what IS.
So this is a story from this journey called "life." Are there downhill experiences? Hell yes! But there is oh-so-much to be thankful for, to enjoy, and to experience. Love with your whole heart. Forgive the best you can. And always always use those words, "I love you." They can never be said too much.
Originally posted Feb 2012, when I originally started this blog.
Blog Do-Over, starting with: My Celiac Journey: Where It All Began---Osteoporosis
Poor health affects our lives. Good health affects our lives. Good health that follows poor health gives us an appreciation for life. My quick improvements gave me a lot to appreciate----and it brought a lot of change. With good comes bad and with bad comes good. Life is a roller coaster.
My failing marriage finally ended a couple years into my gluten free journey. Life happens. It was a difficult time, but when we're at the bottom of a hill we either settle or figure out how to climb back up. I went back to school and started setting goals for myself. I was going to (and did) finally get my education degree.
My kids and my friends eventually started to ask when I was going to start dating. "Dating?"
I didn't know how! haha It was very-----awkward. I hadn't dated in over 25 years! So I went outside my comfort zone and joined a dating site. eeek!
I went on several first dates (with no follow up.) My girlfriends teased that I was too picky. But I was NOT going to force something that didn’t feel right. I wasn't looking for a husband. I was fine on my own. I had a goal and a need to be independent. I didn't want to find someone I could lean on. I didn’t need a boyfriend. But of course, sharing my life with someone else would be nice. So I had fun dating.
I finally reached the point in my education where I had to quit my job as a teacher’s aide in order to start the 2-year Early Childhood program. My contract was about to expire on the dating website I was on, so I was going to let that go for a while and just focus on school. But then I got an email from Steve. So, unenthusiastically, I agreed to meet him. The chemistry wasn’t immediate, but it was there by the end of the date. And we’ve been together ever since (except for that time when I broke up with him – for about 4 hours---I must have been glutened, haha).
I wanted to finish my education first. I was facing a semester of student teaching before graduating that May. And I wanted to get a job and settled into it ---which I did. Yay me!
That all fell into place nicely (for a few years, anyway – until the whole state budget issues, blah blah blah – but that’s a valley and this is about a peak!).
And I made all the food! Completely gluten free, of course! Tons of mini French bread rolls, baked and then frozen, ready to pop in the oven. Texas potato casseroles premade and frozen. Several pounds of thinly slice ham (OK... I didn't have to make that, haha) The chicken came frozen from Sam's - bags and bags of frozen precooked wings - EASY and yummy! Mini cheesecakes of all sorts and mini brownie bites, all made ahead and frozen with crusts from crumbled gf cookies (K-Toos, vanilla and chocolate). Cake layers, both white and chocolate.
Not fancy, but it was good (and we kept the cost down :)
Gluten Free Donut Holes
First warm 2/3 cup milk until room temperature. (I've used both reg milk and almond milk--both have worked just fine.)
Add 1 tablespoon yeast to milk and stir until dissolved (I can never get it to dissolve completely, but it still works out fine.)
In a separate bowl combine:
½ cup potato starch
½ cup tapioca starch
½ cup arrowroot starch (I avoid cornstarch, but I’m sure you could use this instead of arrowroot starch)
1/4 tsp baking soda
2 teaspoons baking powder
½ tsp salt
2 ½ tsp xantham gum
In your mixer (I use my KitchenAid stand mixer) blend 2 tablespoons shortening with ¼ cup sugar.
¼ cup oil (I use olive oil)
1 tsp vanilla
and milk/ yeast mixture
Slowly add dry ingredients, mixing until smooth.
Heat oil (I used a heavy saucepan on the stove) to about 300degrees.
(I keep temp near 300degrees but sometimes it gets to 350)
Add approximately 1 level tablespoon dough to the oil at a time, not crowding. If they are too big they won’t cook in the middle. Keep turning them. They round out nicely and quickly float to the top.
Remove to paper towel covered plate when browned.
Don’t cook too fast or the center won’t be cooked. If you notice them sinking in (not holding their shape once removed) you will know to keep the next batch in the oil a bit longer.
Makes 2 to 3 dozen (depending on size)
Glaze when cooled.
I didn’t measure this real well, so these are approximate amounts:
Approx 2 ½ cups powdered sugar
1/4 to 1/3 cup milk
2 tsp vanilla
Blend well. You want it kinda soupy. Roll donut holes through the glaze a few at a time. Set on a cooling rack or wax paper until glaze dries.
When making a double batch I double everything but the yeast. (1 tablespoon.)
These freeze very nicely!
As I posted before, when I was finally tested for celiac, in 2000 (through a Celiac/Osteoporosis study) my test results were positive, very positive. But at what point in my younger life would tests have actually resulted in a diagnosis of celiac disease? While I had many health issues throughout my life, none were consistent all the way through. Illnesses / diseases / symptoms came and went.
Asthma (A very possible symptom!) From my first attack at just 2 weeks of age and all through my childhood (until about age 12) several severe asthma attacks a year (and thus lots of missed school. Lots).
Skinny, skinny, skinny. A definite symptom! (although not everyone with celiac is thin. Some can't lose weight, some don't have weight issues. There are over 300 different symptoms people can have.) I remember being put on diets to gain weight. My mom tried all kinds of things. My brothers would always call me “spider arms” or “monkey arms” – lovingly and in good humor, of course, but, none-the-less, it impacted me. No one wants to be different or teased.
My stomach. (A definite symptom!) I could push it out (on my skinny frame) far! I’d make people laugh at how far my stomach could go.
Chronic constipation through childhood (A definite symptom!). My mom was always trying new foods to relieve this issue. I remember one effort included sprinkling wheat germ on food. eek!
Pain in my side. (A very probable symptom). I clearly remember having a pain in my side and I remember having times when my side would itch (as though it was coming from the inside out.) I recall a constant round scabbed area on my right side from scratching.
SHY! I was a VERY shy child ('look at me the wrong way and I'd cry' kind of shy) - and then, as a mom, crabby, crabby. Brain fog. Of course, I didn't realize I had brain fog until it cleared. Once gluten free I felt that gray cloud just float away. Occasional errors with gluten contamination remind me of how gluten has impacted my mood----in a very big way! This is the symptom that I am the saddest about, because it is one that impacted others. Not that my physical health didn't impact others. My poor mom was always seeking answers to my not-so-great health and had to worry about me a LOT! (My parents almost lost me once from such a severe asthma attack). My health had a huge impact on my family, (and that makes me sad).
But a crabby, bitchy person can leave a mark of its own kind.
Anemia, easy bruising (very easy), low cholesterol, fatigue, leg cramps - all due to lack of absorbing various nutrients. (Did you know chronic ice chewing is a symptom of anemia and leg cramps can mean you are deficient in calcium and/or magnesium?) So many are being starved and they don't know it! Starved of nutrients vital to organ and brain health. This is a BIG deal! And for a woman growing babies, it wasn't only me affected. I did not look well during my third (and last) pregnancy. Of course, babies take what they need from mom. I was zapped. He was born with a congenital condition that left him legally blind in one eye (which I'll share later). I have often wondered if it was due to the vitamins and minerals I wasn't absorbing.
Hypothyroidism. I discovered this was impacting my health about fifteen years before discovering that I had celiac. The longer a person suffers from undiagnosed celiac, the more likely they are to develop other autoimmune diseases.
As a young adult, and then for several years, “IBS.” Doctor after doctor, meds and more meds, being told I was too stressed (yes! because I was sick!). I remember struggling to hold onto weight.
Sicker and sicker – the symptoms of malabsorbtion take its toll, for sure! But oddly - I didn't look at myself as "sick." I just "was." Finally, in my early thirties, it was a struggle to get to 120 pounds. I remember standing on the scale and reading "114," my lowest point. Not good when you are 5'10" (at the time. Osteoporosis and scoliosis have shrunk me a couple inches.)
Doctors always said, "nothing's wrong."
I could go on and on, but after years of "IBS" (and ‘stress management’ pills, and anti-diarrhea pills, and even having accidents in my sleep, having me think I surely had cancer, even this (the diarrhea) eventually went away….
And then I was diagnosed with osteoporosis, which is how I finally got tested for and diagnosed with celiac – at age 40!! – after a lifetime of issues.
While it took a lifetime, I wouldn't call it a "waste of years." Would I be who I am had I been healthy? No! This passion, this drive to help others avoid what I went through, is an absolute blessing. And if I make a difference in the life of one person, its worth it. Yes, it is worth it to hear and to see the difference made in another person, in their family.
Gluten free struggles or the gift of life. It is truly a gift of life; one that just keeps on giving.
Know someone with symptoms?----go plant some seeds. Don't expect them to grow right away, but there are many, many, many suffering needlessly when diet change is all they need.
(I originally shared this post on 2/18/2012. I had no idea that the next morning would bring our world to a stop in another kind of way. While it was the worst day of my life, I am beyond happy to share that that is all now history and my son is great now!---fully recovered. But that story is for another post.)
One of my very first attempts at pizza crusts, back in the fall of 2000, was Chebe. I've tried several along the way, but it always comes back to Chebe. My favorite!
I like to make several pizza crusts at once and freeze them. When we want pizza, its easy!
6.) Now you have a nice, thin, premade pizza crust ready to top with your favorite toppings.
I get 3 9" thin crusts from each box.
Pizza night is easy when they are ready and in the freezer.
Everyone can make their own pizza, their own way.
I put freshly topped pizzas in a 425degree oven.
I'm not a "recipe" blog, but I do cook and bake and I do have some to share from time to time.
I've experimented with this a few times, using gluten free recipes I've used and from non gf recipes I got ideas from. All three were a hit, but this time I wrote it all down, took pictures, and am now sharing. This is a keeper. I ate some right out of the oven this morning - delish!
I'm eating some right now, right out of the fridge - delish!
It also freezes very well (which is the nice thing about dividing it into two pans.)
After it cools completely, I slice what's left and freeze a large portion of it in order to be able to pull out one slice at a time. Sometimes those times are 7:00am, 12:30pm, 4:00pm. and 8:00pm. Enjoy!
My husband and I have our regular places where I feel safest. Venturing some place new has made for some disappointing experiences (as well as some very joyful ones!)
A restaurant that offers a "Gluten Free Menu" when they don't really completely understand the diet, is dangerous!
One experience last year:
I ordered a dish (from their "gluten free" menu) that included diced red potatoes. Me being me, I asked questions. Come to find out, those potatoes are cooked in the fryer, a fryer that is NOT dedicated gluten free. I was told that if I'm that sensitive to request the steamed potatoes.
Was that on their "gluten free" menu? -- NO!
Chips and salsa were also on their gluten free menu.
Were their tortilla chips fried in dedicated oil? -- NO!
I told the manager that those items should not be listed as gluten free - that that's dangerous - that the chips aren't really gluten free! I was told "we aren't doctors" - and I said (nicely) - "I don't need you to diagnose me - I need you to know your food."
Any restaurant that does not know their food, does not get my business (or the business of those who dine with me).
I NEVER expect a restaurant to accommodate my special needs; I don't look down on a restaurant that is honest and up front and says, "sorry, nothing gluten free available." Their honesty is oh-so-much better than those that pretend.
But if a facility says they offer gluten free items, they darn well should know how to keep it safe for those who need to be gluten free, don't you think?
Beyond Celiac offers kitchen training programs for restaurants, schools, colleges, hospitals, nursing homes, etc. This is something GREAT to share with facilities in your area.
*I am not paid to advertise this program. I wasn't asked to share this information. I am just so passionate about this need, especially for schools and medical facilities, and I'm grateful that there is such a program available!
(If you know of any similar programs, please let me know and I will share it as well.)
Let's make a difference.
I sure wish the hospital and rehab my son was in five years ago was trained in feeding their gluten free patients. (More information on that later this month).