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Needing answers, Katlynn’s primary care physician directed her parents to a pediatric gastroenterologist. With a family history of celiac disease, the pediatric GI ordered a celiac panel, followed by a biopsy of her small intestine, confirming celiac disease. Once gluten free, the vomiting stopped and Katlynn started gaining weight again. Within two months, she was back to her pre-sick weight.
Gluten Free, a way of life---a way of "living!"
So many kiddos are still facing symptoms without testing----for weeks, for months, and for years! While three months is a long time for this beautiful girl to be sick, the reality is, her answer came quickly. Many live with symptoms for years and years before someone thinks to test for celiac disease (the most common yet most under and mis-diagnosed genetic autoimmune disease.)
Gluten free?----pfffff----not a problem. This diet gave this little girl her life back.
So, what happens if Katlynn gets gluten now? (Of course, the only time she does get gluten is through an accident or through cross contamination. Her family is vigilant about her diet.) If she gets any gluten at all, she suffers from leg and joint pain and she vomits every two minutes for six hours! I had to reread what mom sent me: “every two minutes for six hours!” This makes me think of all those who wonder how just a few crumbs could hurt. They do!! Its not always in this obvious way, but not all harm is something we can immediately see. This sweet girl relies on the important adults in her life to keep this from happening.
Katlynn's severe reactions make her extra cautious about any food other than what comes straight from home. But as long as its safe, she likes many foods: gluten free pretzels and hummus, gluten free English muffins, gluten free banana bread, and so much more. This doesn't mean it's always easy for her, however.
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Share a Story, Plant a Seed
Approximately 1:100 people have it, yet most who do, still don't know it.
(And even more have nonceliac gluten sensitivity.)
Testing -- It's Our Right
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