Another story of someone who experienced symptoms as a child, yet wasn't diagnosed until an adult. Christina suffered from severe migraines, constipation, and stomach aches as a child. Of course, as with anyone diagnosed with celiac as an adult, it can’t be proven that these childhood issues were caused by gluten (but gluten is highly suspected).
After several years of symptoms, Christina was tested for celiac in 2007. The blood test was negative, but she had the gene, had been experiencing symptoms for the ten years prior, and had a sibling who tested positive for celiac. For those reasons, her doctor diagnosed her with celiac. She had been so sick prior to testing that her diet had been limited to bananas, mashed potatoes and applesauce. And, of course, a person needs to be consuming gluten for accurate testing.
Christine was also diagnosed with Sjorgens about five years before she was diagnosed with celiac--and, besides having celiac, she is also allergic to wheat, requiring her to carry an epipen. (Celiac is an intolerance, not an allergy; these are two separate issues.)
Email me at firstname.lastname@example.org (and I'll send you a questionnaire).