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DSimpsonBooks

Adam - A Gluten Free "Resource" for All Classrooms

1/29/2013

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I originally wrote
Adam's Gluten Free Surprise: 
Helping Others Understand Gluten Free
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to help teachers and family understand gluten free and to help them develop empathy for a child (or adult) who requires a strict diet.  

This is a book for teachers to also share with their class and to include in discussions about food allergies and special diets and the importance of including all our friends.

(An identical version for girls is now also available:              
                                       Hailey's Gluten Free Surprise.)

Below are some highlights 

Click on pictures for a larger view:

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“When your book bags are empty and you are all sitting at your desks, I have a special treat for you,” said Mrs. Brown. “I will pass it out for you to enjoy while I talk about our new year.”
Adam couldn't join the class when they enjoyed donuts that a mom sent on the first day of class.
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Mrs. Brown was as surprised as everyone else with the special birthday treat that Emily’s mom brought. She apologized to Adam for not having a gluten free cupcake for him.
Adam couldn't join the class when someone brought cupcakes for a birthday without giving prior notice.
Adam always said "That's O.K.!"  as he chose something from his special treat box.
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She apologized to Adam for not having a gluten free cupcake for him. He could choose something from his special box of gluten free treats though. "That's O.K.! "My mom makes great gluten free cupcakes”", Adam said. "“She told me she can send one in for me if she knows there will be a party."
When Adam's teacher offered him a bowl of ice cream to replace the cone, he said 'no thank - you' because he knew there were crumbs in it.
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"There are ice cream cone crumbs in the ice cream. My mom always scoops mine out first. But that’s O.K. Mrs. Brown. I’ll pick something from my treat box.”"
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"I think we have things right this time Adam"”, said Mrs. Brown. "“Your mom sent a gluten free cupcake and I checked with her on the ice cream cups."
With advanced notice given to mom, his teacher was able to offer Adam a gluten free cupcake!
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The day of the feast was exciting for everyone. The turkey was roasting in a big electric roaster in the cafeteria, filling the air with wonderful smells.
But when the smells of the turkey roasting for their thanksgiving feast filled the air, he got sad because he knew he couldn't eat any.
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The dad who baked the pumpkin pies said, “And if I knew, I could have put some pumpkin pie filling into a small dish without a crust so Adam could enjoy it too. I would be very careful that everything was gluten free and separate.”
When the parents talked about why Adam's mom sent him a separate plate of food for their feast - and then shared ways they could have included him, his teacher felt bad for not knowing how to include him.
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Adam’s mom put a hand on her shoulder. “"That’s o.k. Mrs. Brown. It took us a long time to learn about his diet. And we are still learning! As long as you keep being very careful that he stays away from the wrong foods at school, we can do the rest."
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Gabe asked her what gluten was. Adam’s mom wrote Mrs. Brown’s name on the board, one letter under the other. She said,
After Adam's mom talked to the class about gluten free, bringing samples to try, of course - they decided to surprise him by making their Valentine's Day party completely gluten free.
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“My aunt and two cousins have celiac too. When we have big family parties we make sure all the food is gluten free. I think our Valentine’s Day party should be gluten free for Adam. We are all his school family.”
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"But Adam",” she said, "“Our Valentine party is ALL gluten free, from everything in the taco bar to all the treats in everyone’s Valentine goody bags."
Adam sure wanted some tacos. They smelled so good. But he went to his gluten free box for something safe.
- and then - his teacher told him that ALL the food was safe - and everyone yelled "Surprise!"
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Everyone cheered, “Surprise!”
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How 'Adam' Was Born -- A Gluten Free Children's Book

5/24/2012

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After a lifetime of (mostly unnecessary) health issues, I was truly excited to finally be diagnosed with celiac in September of 2000. Although there were several ‘down times’ that were centered on social challenges and self pity, the overall  improvements were positively life altering. I almost immediately sought and discovered online support – and through this process discovered how hugely unrecognized celiac was.  I was appalled and amazed and very quickly passionate about spreading awareness. 

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That year – 2000 – was also the year I turned 40.  What a great gift!  As the  days and weeks progressed without gluten in my diet, I felt myself transition into a healthier, happier, calmer, more rested person.  My once stick frame started filling out and I felt more energy and enthusiasm for life.

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This energy turned        into passion for celiac awareness.            It was devastating to me to have this knowledge of such an “easy” answer that was obviously being  overlooked time and time again.  My first effort was put into a letter that I sent to 100 local physicians, sharing my journey and requesting that they not overlook celiac testing.

Next – I contacted the local newspaper.  The reporter wrote an amazing full page article that resulted in me receiving a handful of letters (sent to the school I worked at and forwarded to  me from the newspaper). From this initial group of  people  who were reaching out, I coordinated a meeting at a  local restaurant  for our first informal celiac support group meeting.  OH WHAT A  RUSH!

I wanted to start a ‘real’ support group – but at first I found this to be  a daunting task.  Within the year, however, I did it - the Belleville (Illinois) Area Celiac Support Group was formed.  We had  montly meetings with food, with speakers – (including Dr. Kenneth Fine, a  representative from the University of Chicago, and Shelley Case, author of Gluten-Free Diet: A Comprehensive Resource Guide)  I drove home from each gathering on such a ‘high’!.   I sure wish I had pictures - but that was before I had a digital camera - and back when I was much more technology challenged,  lol
Another meeting included local dietitians. I made a call to one from the yellow pages and inquired about including dietitians at a meeting. Apparently I called the right one because she
needed to form a meeting for a group of  dietitians for professional development. We collaborated for a memorable meeting. After hearing stories told by support group members, the dietitians decided to work with us to create a menu guide for those newly diagnosed, our “Two Week Survival Menu Guide.”  LOVED IT!   By this time I had met several fabulous women who became a huge part of the development of this menu guide - and who I still call friends. We met several times to provide a guide we believed would best help newly diagnosed patients and the dietitians made certain it met all the dietary needs. Several meetings later, our support group and dietitians' group had formed a survival menu guide. It has transformed since its original development as a dietitian maintains it and  keeps it current. I have not had any involvement in it for years now. Here is what it looks like today: Gluten Free Survival Guide
A couple years after I was diagnosed, my declining marriage (which I had hoped would be revived along with my health) declined further as we were now separated.  So – I had one giant step forward and one giant step back. This very difficult time coincided with a new very exciting
time.  I had a growing desire for our group to expand and join in the annual Celiac Walk in May, joining forces with the University of Maryland’s Celiac Disease Center. I did not have that
energy to coordinate such an event however – until – that one WONDERFUL meeting when someone new joined us (Kate) - with all her new, fresh energy and paper in hand that gave information about the Celiac Walk. We quickly became friends.
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I contacted someone I knew in St. Louis who had started a yahoo support group for the St. Louis area (St. Louis Alerts).  She then made more contacts – and then a handful of us got together (from Illinois metro east and St. Louis area) to discuss plans and ultimately create the BiState Celiac Support Group.   Again – WHAT A RUSH! What a FABULOUS first picnic – 2003 - Our first of many – which only grew (for several  years, anyway).

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Michael at the picnic in 2005
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A Gluten Free Pie Eating Contest - 2007
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Lots of vendors and samples - 2008
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Adam met Fred Bird - 2011
But –the summer of that picnic was also the summer when I had to face the fact that my marriage was over. And I panicked. What would I do? I had been a stay-at-home mom for fifteen years – and then a teacher’s aide for five (at that time).  It was not only very sad to see my family torn apart, but I now also needed a means in which to support myself. I needed a retirement plan. I needed a new direction in life. I needed to show my kids that life challenges can be altered into new life beginnings.
So I immediately enrolled back in school where I completed my general education classes, while still working as a teacher’s aide, over the next two years (with the help of anti-depressants that first  year – for the first and hopefully last time in my life). I was able to  contribute less and less to the support group. But what the group gave me in return was just too much for me to leave it all together. So I pushed through, continuing my involvement in the support group while going to school and  trying to keep some  normalcy in my family.
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And then – in 2005 I had to quit my  job in order to enroll in the 2 year education program (which was only offered during the day, of course).

And – that summer before this all started – I met  Steve.

Whew! Life became crazy busy. And along the way I had to loosen my ties with the support group – physically, anyway. It was during one of my drives back and forth to school that the inspiration for ‘Adam’ came to me. It was while driving that I had time to think freely. It was just frustrating not to have the time to see all my ideas through. During my involvement with the support group, I had heard time and time again the frustration over the lack of support and
understanding from family, day care providers, teachers, etc. And this idea for this children’s book had me leaping for joy!  I couldn’t wait to get home to write the idea down. Which I did – and where it stayed, tucked away.
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A new school year started and I wished that that idea had been created into a book to offer parents. And then another school year and another. And along the way, I finished my own education, continued to watch my own children grow, watched  my oldest get married and then got remarried myself (and moved about 4 times in the process – another story of its own, haha).

      So – life was too busy to put into this little book that I envisioned could make a BIG impact for boys and girls.

So there it was: in 2007 I graduated from school and got a teaching job right away. LOVED IT! 
In 2008, Steve and I got married. In 2009 we built our home together. And in 2010, after teaching for three years, I lost the job I loved so much when Illinois state budget cuts caused my school to close my classroom.  A roller coaster. I HATE roller coasters, yet …. I can’t seem to get off the one I’m on. Guess I don’t really want it to stop – cause isn't that life? - a giant rollercoaster?
So that summer was spent job hunting – and hunting – and hunting. But I was competing with a million other teachers who also lost their jobs, most, much younger than me. I kept a fraction of optimism until school started and I realized – "It’s not going to happen."  During that previous spring and through the summer – when it looked like employment might be ending –I knew I needed to make something else happen. So I started to push the idea of getting the book going a bit more. After failed attempts with bigger publishers, I decided to go the self-publishing route. And I needed someone to illustrate it. After talking with a few people, and nothing seeming to work out, my daughter said to me, “You can do it mom.”  Those were amazing words from one of my amazing kids. Something a parent is used to telling their child "you can do it" was turned around to me and - wow! This thought had never crossed my mind. But – it was the end of August – I was without a job – So, I did it.
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 I was SO EXCITED to finally get my first copy in the mail. It was February 2011 – and  it was finally published - about five years after the idea first came to me.  WAY COOL! My book – and the resource I wanted to  supply to parents would finally be available for the following school year! YAY!
  Of course – letting others know it was available was (and continues to be)  another thing. Lol

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In the summer of 2012 I decided to change the cover that I was originally unhappy with.  I also learned how to edit the illustrations to make this a more visibly appealing book. 

And then in 2013, I altered the cover one last time. I also decided to make another version - a "girl" version. And in this process had a fun name contest. So now there are two permanent versions, as pictured below.

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    Free of Gluten, 
    Not Free of 
    Feelings: The 
    Emotional Side of Dietary Differences

    A Children's Book
    for Adults.
    Helping Others Understand
    Gluten Free.
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    Our inspirational journey also includes the frightening reality that hospital food isn't always safe for those who need to be gluten free.
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    Disclosure: 
    I am a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means to earn fees by linking to Amazon.com and affiliated sites. This does not affect your price, it only means that I am minimally compensated when you purchase through the links provided. 
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